Every FND journey is different, and today I'm sharing Brian’s. Known to many in the community as King B, he’s a constant source of kindness, strength, and support. Whether it’s checking in, lifting others up, or simply making us smile.. Brian’s presence makes a difference. It’s an honour to share his words with you.
Here's his story, in his own words.
I’m originally from london, england, on my 3rd birthday my family noticed there was something wrong with me as i was unwell with being dizzy.
All through my childhood i could never have a normal child life i always had to be careful on what i do as i would get dizzy most of the time and i had all these different tests done like mri scans, 50 wires strapped to my head etc but nothing would tell us what was wrong with me and all the doctors would say is its childhood migranes.
When i was 10yrs old we decided to move to Scotland as thats where my dad was originally from and wanted to have a change in life so we moved to Edinburgh but then shortly after we moved my dad got diagnosed with tongue cancer which was a massive shock.
In 2013 my dad thought it would be a good idea to move closer to his family for support so thats what we did but shortly after we moved my dad diteriorated and he shortly passed away after.
With the trauma of him passing i noticed some other symptoms come into play like my legs always felt weak and i would collapse, my eyes would get blurry/double vison, memory loss etc and i would keep having tests but nothing was showing what was actually wrong with me and i was constantly in and out of school as i was always unwell, i even had to give my dog away as i couldn’t look after him which was my dads last gift to me. Everyone thought this was all in my head or looking for attention as my dad had just passed away.
Finally 20yrs later after my 3rd birthday i got told over the phone that i have something called functional neurological disorder which i had no clue what that was so i made sure to do some research and i was feeling 2 different things 1. I was feeling relieved after finally finding out after all this time what was wrong with me and 2. The realisation hit that i will be stuck with this for life and may get worse in future so what i have done since then is going on social media to spread awareness so noone goes through the same as me and i have had people reach out to me thanking me for helping them get diagnosed or just being supportive to them.
Brian.
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Such a sad story especially about you dad and your dog, but you have proven how strong you are by continuing to fight both for yourself and for others. There are a lot of social media people who spend their time and energy putting what I classify as crap on every platform avalible, you on the other hand use it for doing something positive for others. It's people like yourself and Rae that talk about the real FND life that help not the idiots who jyst want free stuff through sponsorship or to boast about how many followers they have. So on behalf of the FND community I would like to say a massive thank you.